Chapter Twelve
The Calm Before the Storm
Somehow you always know when a storm is brewing on the horizon;
the atmosphere eerily changes.
Mom came home but she was so weak now. She was in the hospital
for two weeks on very strong antibiotics. For the first time, she
couldn’t walk without assistance. She had pain and showed
it; she was always able to hide the pain before. She had never been
this weak, and she slept most of the time. She was so tired and
had no energy. Coming home after being in the hospital for so long
gave us an opportunity to gauge the progression of the disease.
Simple tasks that she could do at home before, such as walk from
outside to inside or from the den to the bedroom, she could no longer
do. I couldn’t believe how quickly Mom had declined. From
the moment they told her that the cancer had spread and they were
releasing her to hospice, she gave up all hope. She had no idea
it would take her so soon; neither did we.
We came home with Mom on a Sunday afternoon. Her two closest sisters
were waiting at the house with Dad when we arrived home. After we
helped her walk into the house, we could see the shock in her sisters’
faces when they saw her. Everyone had expected her to come home
from the hospital fixed, not more broken. One sister started to
cry in the background, nearly silently. It was heartbreaking. I
prayed Mom didn’t hear her.
I was to spend the day with Mom, and my sister planned to handle
a Social Security call for Mom that morning. My sister and I arrived
Tuesday morning to a locked door. When we got inside and went into
her bedroom to say good morning, we found her in extreme pain—writhing
in pain. Dad said she had been up most of the night in pain. She
looked at me and her face was so twisted with pain that I just couldn’t
bear it. She cried weakly to me, “The pain is so bad…I
hate living like this.” It devastated me that she was in pain
all night and I didn’t know. I had to get her out of pain—and
I had to do it now.
I got on the phone with the hospital trying to find Mom’s
doctor, and then I was referred to hospice. I was trying to hear
the person on the other end of the phone while of course getting
the HMO runaround. Dad sat at the dining room table and tried to
pretend that this morning was as normal as any other. My sister
nervously paced around in the kitchen while she loudly talked to
Social Security on her cell phone. The neighbor walked in and Mom’s
dogs started barking. I couldn’t hear a thing on the phone,
and I absolutely lost it. I had to get the house less hectic and
quieter in order to operate.
I finally got through to hospice to get Mom her first prescription
of morphine; then, I sent Dad to the hospital to retrieve it. It
gave him some way to help and something to do (and got him out of
my hair). I asked my sister to go to work; her cell phone kept ringing
and was driving me crazy. It’s nothing personal; I love my
sister and I know she was doing her best to help. But I just couldn’t
focus with all the distractions. Even though it devastated me to
see my mom in this state, I put my feelings aside and made my body
and brain go into overdrive to get her help. I then concentrated
on getting some food into Mom’s stomach so that I could give
her some pain medication that we had on hand.
Many times, I had hated the fact that Mom argued with me every
time I tried to encourage her to take the pain medication before
the pain was bad. It got to be a very old argument between us. That
morning, though, she wasn’t arguing with me. I finally got
a little food and a pill into her, which helped a little while we
waited for the morphine...
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